Tuesday 20 October 2009
HiJust me. Here is a link to the interview I did on This Morning http://www.bebo.com/Profile.jsp?MemberId=10067167339For me this was a huge step in my 'recovery journey' as even alot of my friends and family had no idea how badly I had suffered. It is only now that I am feeling good that I can look back and reflect upon the last few years, and I have to say I have no idea how the hell I managed to get through it. In a strange way, I had to get worse before I could get better. Before having the boys I knew I suffered from PMS but kinda just got on with it, however after 2 pregnancies my hormones were all over the place, and having the boys meant I could no longer 'lie down' to it. Not an option with two young ones to chase about!! They kept me going, but on those bad bad days I have no idea how I made it to the end of the day still standing. For me the chronic exhaustion was one of the worst symptoms. That tied with the whole lack of confidence, paranoia, and hopelessness was just no way to live. Glad to say life is now 'normal' all the time. Which means yes I still get tired, grumpy etc but not in a ridiculous way!!
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Hi Donna,
ReplyDeleteJust watched your interview, if I had of seen that on TV it would have come to light then. Its only been 5 weeks since I discovered the pattern, about 8 days leading up to that period I felt the anxiety worsen, I was up at 5am sitting shaking and feeling like I was going to lose my mind any minute. I felt helpless. 2 hours later I got my period. It peaked and then subsided after a day or 2.
I was back to feeling normal, but I needed to see the doctor and suggested to her it could be PMDD. So I am on Sertraline. Got my period today. When I left that first comment, I didnt think they were helping. I have still had the odd day in this past week, where I have been anxious and irritable and subdued. The question is do I continue with these tablets, as the severity has lessened. Am I just delaying the inevitable that when I come off these it will all come back, and it scares me. I am not depressed, I am in a good place in life, I was in a better place before I had to leave my job because of how i was feeling at the end of each month. I know 100% its all down to my cycle. I dont want to be on these pills forever. I am taking Propranolol, Sertraline and Vit B6 (7 tablets a day). Where is the website that lists the methods I should try before a hysterectomy?
Hi
ReplyDeleteIts the National Association for PMS www.pms.co.uk if you become a full member you can download the clinical guidelines and my answer to you would be yes, the tablets will not solve the problem as they are not hormones. I spent 8 years 'masking' the problem with various drugs etc, the only thing that works is hormone treatment, did you get my last reply i sent you
Hi Donna,
ReplyDeleteYes I got the reply on your other post, about the injection for the menapause. I will be making an appointment later today to see a female doctor who may understand a little more. I had a really horrible night last night, feeling anxious and weird. Did you feel as though you werent right and that you are going crazy?
Hello Donna,
ReplyDeleteI have PMDD too! it's nice to know i'm not the only one! It's hard to talk about it to people since they don't really understand the nature of this beast, but it's nice to see you on the blog writing about how you feel. I'm hoping to be share my days on my blog as well! Nice to know your feeling better.
Hi the link has expired x
ReplyDeleteI'm DESPERATE for help.
ReplyDeleteI really want a hysterectomy but my gyne just laughed at me.
I'm
38 and live in Essex
1. I suffered bad PMT from
ReplyDeleteThe start of my periods age 14/15.
2. I also suffered depression but it was blamed on life events.
3. I remember explaining to my doctor that my mood 'zig zagged' up and down (possible cyclic due to hormones)
4. 10 yrs ago planned pregnancy
5. Mood changed immediately. Had anger, grumpiness, severe fatigue, rage, tearful
6. Difficult birth and baby wouldn't breast feed but I was so stressed. Midwife Said she was concerned I'd 'lost it' But never did anything about that!!!
7. Pmdd kicked in almost immediately. Rage. Horrendous rage. Anger. Sweats. Nightmares. Irritability. Itchy/crawling skin, anxiety, sadness, loss of interest in activities, lethargy, food cravings, suicidal ideation, lack of concentration, bloating, sore breasts, flu like aching, acne/cyst like painful spots.
Had second child within 15 months. Mood better this time during pregnancy. Severe fatigue.
8. Doctor said PND but I didn't agree. Put on ssri's
9. Rage so bad and hostility and anger caused relationship to be destroyed. Partner unsympathetic, not supportive & sometimes antagonising.
Separation from partner of 7 years. Put on stronger dose ssri's
Mood blamed on separation
10. Mood, rage, anger, depression stayed the same. They changed my ssri's upped the dose. Changed ssri's again. Upped dose, changed AGAIN. Upped dose. I was up and down and all over. They blamed it on being single parent.
11. Doctor changed from ssri's to MRRIs told me to come down off 60mg fluoxetine in space of a week & have 2 day break before starting metazapine.
I crashed. Had suicidal thoughts. Couldn't get out of bed. Couldn't stand, shaking, crying, complete break down. Assessed by mental health team.
Decided to go to local mental health hospital as day patient until safe. Had 3 months off work. No money. No support. Struggled with concentration & stress. Got behind financially.
Diagnosed by psychiatrist as pmdd. NOT a mood disorder but HORMONAL. Given 150mg venlafaxine
**ABSOLUTELY NO INFORMATION OR SUPPORT GIVEN.**
12. Referred to gyne. 4yrs ago. Advised to have Mirena coil & 100mg HRT oestrogen patch. Took away anxiety but not enough so upped to 200mg twice weekly.
13. Venlafaxine making me zombified. Sleeping all day long. Struggled with daily chores/ work/ kids.
14. Had aches and pains flue like symptoms told maybe fibromyalgia but this co-insides with venlafaxine side effects.
15. Decided to come off venlafaxine. Within a year, pmdd symptoms double severe. Rage, moods, conflicts, broken relationship with mother, partner of 4 yrs. horrendous. Almost suicidal. Self hatred.
16. Bk to gyne who laughs at my request for full hysterectomy saying I'm too young & it's not a quick fix as if I'd not seriously considered it.
17. pleaded for GnRH injections which I've responded to brilliantly as long as I'm wearing 100mg HRT patch.
18. Mirena coil removed.
19. I'm going to ask to be referred to someone to plead for full hysterectomy. I go bk to my gyne on 28th april. I'd also like to be scanned for fibroids.
Is ruining my life.
Ruining my kids lives
I hate everyone when it's hear. It's a monster. It's evil. It's a curse. It's out of control. I rage. So much anger. I'm hostile. Reactive. Emotional. A mess. I swear. I have road rage. I can't think. I get paranoid. Noises are louder. Lights brighter. Smells stronger. My boobs hurt and tingle so bad it gets me down. I make poor decisions. I can't bare to be touched. My skin itches and crawls. My blood tingles. Restless legs. Mind races. I have nightmares. I'm fat. I crave carbohydrates & binge eat.
I'm a vile creature.
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